April 2014


ACT-AD Member Announces $8.7 Million in Research Grants for Alzheimer’s and Vision Diseases

The BrightFocus Foundation, a founding ACT-AD member, announced this month that it will distribute more than $8.7 million in grant awards to help fund research for Alzheimer’s disease, as well as other diseases of the mind and sight. More than $5.2 million of which goes specifically to Alzheimer’s research. The projects receiving the grants will be named at a later date. For the release, go here.

Coalition Sponsors Health Affairs Special Issue on Alzheimer’s Disease

ACT-AD is a sponsor of the April edition of Health Affairs. The April edition focuses on various aspects of Alzheimer’s disease and is entitled “The Long Reach of Alzheimer’s.” Articles in this special issue cover a spectrum of policy and care issues such as the challenges with Alzheimer’s research and how to provide support to people with Alzheimer’s and their caregivers. Representatives from the National Institute on Aging and members of ACT-AD were some of the contributing authors. ACT-AD sponsors Eli Lilly and Janssen Pharmaceuticals also helped to make this issue of Health Affairs possible. For more, please go here.

ACT-AD Chair Holds Successful Screening of ‘Pocket Films’ at French Embassy

The French Embassy and the Alliance for Aging Research, ACT-AD’s chairing organization, played host to a special screening of A Quick Look at Alzheimer’s, a series of five short animated films describing the condition and how it affects the brain. Developed in partnership with David Shenk, noted author of The Forgetting, and narrated by David Hyde Pierce, their purpose is to provide a better understanding of Alzheimer’s disease, reduce stigma, improve care, and help the search for a cure. Originally developed in English, these “pocket films” have been translated into 14 languages. The embassy event presented an opportunity for members of the Washington, D.C., and D.C.-based international community to come together for an evening of food, conversation and education. To view the films, go here.

CMS National Partnership to Improve Dementia Care in Nursing Homes Holds Call on May 20th

The National Partnership to Improve Dementia Care in Nursing Homes has announced it will hold a MLN Connects™ National Provider Call on May 20th from 1:30 to 3 p.m. During the call, a subject matter expert from the Centers for Medicare & Medicaid Services “will provide National Partnership updates, discuss efforts to monitor enforcement rates, and track surveyor training completion. Additional speakers will be presenting on the critical role that activity professionals play in the mission to improve dementia care and the reduction of antipsychotic medications through person-centered, non-pharmacologic care approaches. A question and answer session will follow the presentation.” The session will be of benefit to: consumer and advocacy groups, nursing home providers, the surveyor community, prescribers, professional associations, and other interested stakeholders. For more info, go here.

7th Annual FDA/Alzheimer’s Disease Allies Meeting Set for November 6th

Make sure you mark November 6, 2014 on your calendars. ACT-AD will host its 7th Annual FDA/Alzheimer’s Disease Allies Meeting for patient groups, regulators, researchers and industry at the Bethesda North Marriott Hotel & Conference Center (5701 Marinelli Rd., Bethesda, MD 20852). This meeting will explore challenges related to clinical meaningfulness in therapeutic development for early Alzheimer’s disease. Check out this page for updates.