ACT-AD is a growing coalition of organizations representing people with Alzheimer’s disease, caregivers, consumers, older Americans, researchers, and women’s health advocates.
The Abigail Alliance’s mission is to assist cancer patients and others with life-threatening illnesses. Started in 2001, the Alliance is named after Abigail, who had run out of conventional options in her battle against cancer. The Abigail Alliance is dedicated to helping create wider access to developmental drugs for critical diseases. The Alliance educates the public on and promotes the need to have more expanded access and compassionate use programs for patients that have run out of conventional treatment options. The Abigail Alliance also researches current government policies and regulations to help insure that there are no federal government issues that are blocking wider access to developmental drugs.
Academy of Correctional Health Professionals
The Academy of Correctional Health Professionals is the nation’s community for correctional health care. Through publications, educational activities and special events, the Academy works to connect you with peers from across the country. The Academy provides you with the latest information and knowledge specifically designed to help you, the correctional health professional.
Alliance for Aging Research
The Alliance for Aging Research is the nation’s leading citizen advocacy organization for improving the health and independence of Americans as they age. AAR was founded in 1986 to promote medical and behavioral research into the aging process. Since then, and as the explosion of the Senior Boom approaches, AAR has become the voice for Baby Boomer health by developing, implementing and advocating programs in research, professional and consumer health education and public policy.
The Alliance believes that science can help people live longer, more productive lives. AAR feels that greater access to the latest scientific information will empower people to take control of their own health, while educating them on the importance and need for further medical advances. From policy issues to consumer health programs, AAR works to generate knowledge and action on age-related issues.
Alzheimer’s Drug Discovery Foundation
The Alzheimer’s Drug Discovery Foundation (ADDF) is a public charity solely dedicated to rapidly accelerating the discovery and development of drugs to prevent, treat and cure Alzheimer’s disease, related dementias and cognitive aging. Since its inception, the ADDF has granted more than $51 million to fund over 370 Alzheimer’s drug discovery programs and clinical trials in academic centers and biotechnology companies in 18 countries. Subsequent to the ADDF’s critical initial seed funding, our grantees have received additional follow-on funding from government, pharmaceutical companies and venture capital firms in excess of $2 billion to further advance their drug research.
Alzheimer’s Foundation of America
The Alzheimer’s Foundation of America (AFA) is a non-profit foundation comprised of member and associate member organizations across the U.S. dedicated to meeting the educational, social and emotional needs of individuals with Alzheimer’s disease and related illnesses, and their families and caregivers. AFA’s mission is “to provide optimal care and services to individuals confronting dementia, and to their caregivers and families through member organizations dedicated to improving quality of life.” Founded in February 2002, AFA raises public awareness about the disease and lends expertise to healthcare professionals.
Under AFA’s umbrella, these organizations collaborate on education, resources, program design and implementation, fundraising campaigns, and advocacy — all resulting in better care for those affected by the disease. AFA was also founded on the belief that by raising awareness of the disease and educating healthcare professionals and the public at large, it would help remove the stigma of the disease and lead to early detection and proper treatment.
Alzheimer’s Research Foundation, Fisher Center
Alzheimer’s Research Foundation, Fisher Center is a leading source of funding for Alzheimer’s research. We serve Alzheimer’s patients and their families by seeking to understand the causes of, discover a cure for, and improve the lives of people with Alzheimer’s disease. Nobel Laureate Dr. Paul Greengard directs the Foundation’s team of internationally renowned scientists, who have been at the forefront of research to understand and find a cure for Alzheimer’s disease. We are award-winning leaders in public education through our website and our Preserving Your Memory magazine. Only 8 cents on the dollar is used for overhead purposes. Alzheimer’s Research Foundation, Fisher Center has earned Charity Navigator’s highest 4-Star rating for fiscal management and commitment to accountability and transparency. Learn about our breatkthrough research and find helpful caregiving resources at www.ALZinfo.org.
American Academy of Ambulatory Care Nursing
The American Academy of Ambulatory Care Nursing (AAACN) is the association of professional nurses and associates who identify ambulatory care practice as essential to the continuum of high quality, cost-effective health care. We offer many networking opportunities, cutting edge articles on ambulatory care practice, awards and scholarships, and discounts on our products and education events. Our annual conference and our monthly audio conferences are a must! You’ll hear the best speakers in ambulatory care. AAACN provides education to ambulatory care professionals through our annual conference, audio-conferences, and CE articles in our Viewpoint newsletter and on-line. Our many education products include ambulatory and Telehealth standards, Syllabi from our ambulatory certification and telehealth nursing practice core course. The Core Curriculum for Ambulatory Care Nursing, and certification exam preparation tools.
American Academy of Neurology
The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 21,000 neurologists and neuroscience professionals dedicated to providing the best possible care for patients with neurological disorders.
As a medical specialty, the Academy of Neurology is established to advance the art and science of neurology, and thereby promote the best possible care for patients with neurological disorders by: Ensuring appropriate access to neurological care, supporting and advocating for an environment which ensures ethical, high quality neurological care, providing excellence in professional education by offering a variety of programs in both the clinical aspects of neurology and the basic neurosciences to physicians and allied health professionals, and supporting clinical and basic research in the neurosciences and related fields.
American Association for Geriatric Psychiatry
Founded in 1978, the American Association for Geriatric Psychiatry (AAGP) is a national association representing and serving its members and the field of geriatric psychiatry. AAGP is dedicated to promoting the mental health and well being of older people and improving the care of those with late-life mental disorders. AAGP’s mission is to enhance the knowledge base and standard of practice in geriatric psychiatry through education and research and to advocate for meeting the mental health needs of older Americans. Through the Geriatric Mental Health Foundation, the AAGP raises awareness of psychiatric and mental health disorders affecting the elderly, eliminate the stigma of mental illness and treatment, promote healthy aging strategies, and increase access to quality mental health care for the elderly.
American Federation for Aging Research
Since 1981, the American Federation for Aging Research (AFAR), through its own privately funded grants and other administered programs, has provided $87 million to more than 2,100 talented researchers to help them begin and further careers in aging research and geriatric medicine.
AFAR fulfills its mission to promote healthier aging through biomedical research by:
Supporting research that furthers our understanding of the aging process and its associated diseases and disorders;
Building a cadre of new and young scientists in aging research and geriatric medicine;
Offering opportunities for scientists and physicians to exchange new ideas and knowledge about aging;
and Promoting awareness among the general public about the importance of aging research.
American Geriatrics Society
Founded in 1942, the American Geriatrics Society is a nationwide, not-for-profit association of geriatrics health care professionals dedicated to improving the health, independence, and quality of life of all older people. The Society supports this mission through activities in clinical practice, professional and public education, research, and public policy. With an active membership of over 6,700 health care professionals, the Society has become a pivotal force in shaping attitudes, policies, and practices in geriatric medicine.
American Medical Student Association
The American Medical Student Association (AMSA), with a half-century history of medical student activism, is the oldest and largest independent association of physicians-in-training in the United States.
Today, AMSA is a student-governed, national organization committed to representing the concerns of physicians-in-training. With a membership of nearly 60,000 medical students, premedical students, interns, residents and practicing physicians from across the country, AMSA continues its commitment to improving medical training and the nation’s health.
American Medical Women’s Association
The American Medical Women’s Association (AMWA) is an organization of 10,000 women physicians and medical students dedicated to serving as the unique voice for women’s health and the advancement of women in medicine. Founded in 1915, AMWA strives to achieve its mission by providing and developing leadership, advocacy, education, expertise, mentoring, and strategic alliances. AMWA empowers women to lead in improving health for all within a model that reflects the unique perspective of women.
American Nurses Association
The American Nurses Association is the only full-service professional organization representing the nation’s 2.9 million registered nurses (RNs) through its 54 constituent member associations. The ANA advances the nursing profession by fostering high standards of nursing practice, promoting the economic and general welfare of nurses in the workplace, projecting a positive and realistic view of nursing, and by lobbying the Congress and regulatory agencies on health care issues affecting nurses and the public.
American Psychological Association
The American Psychological Association is the largest scientific and professional organization representing psychology in the United States. APA is the world’s largest association of psychologists, with more than 137,000 researchers, educators, clinicians, consultants and students as its members.
APA’s mission is to advance the creation, communication and application of psychological knowledge to benefit society and improve people’s lives.
American Public Health Association
APHA has been influencing policies and setting priorities in public health for over 125 years. Throughout its history it has been in the forefront of numerous efforts to prevent disease and promote health.
The American Public Health Association (APHA) is the oldest and largest organization of public health professionals in the world, representing more than 50,000 members from over 50 occupations of public health.
American Society of Anesthesiologists (ASA)
Founded in 1905, the American Society of Anesthesiologists (ASA) is an educational, research and scientific society with more than 52,000 members organized to raise and maintain the standards of the medical practice of anesthesiology. ASA is committed to ensuring physician anesthesiologists evaluate and supervise the medical care of patients before, during and after surgery to provide the highest quality and safest care every patient deserves.
- [Chronic Pain Resources: https://www.asahq.org/whensecondscount/pain-management/types-of-pain/chronic/]
- [Opioid Treatment and Risks Resources: https://www.asahq.org/whensecondscount/pain-management/opioid-treatment/]
- [Non-Opioid Treatment Resources: https://www.asahq.org/whensecondscount/pain-management/non-opioid-treatment/]
American Society of Consultant Pharmacists
The American Society of Consultant Pharmacists (ASCP) is the international professional association that provides leadership, education, advocacy, and resources to advance the practice of consultant and senior care pharmacy.
In their role as medication therapy experts, consultant and senior care pharmacists take responsibility for their patients’ medication-related needs; ensure that their patients’ medications are the most appropriate, the most effective, the safest possible, and are used correctly; and identify, resolve, and prevent medication-related problems that may interfere with the goals of therapy.
ASCP’s 7,000+ members manage and improve drug therapy and improve the quality of life of geriatric patients and other individuals residing in a variety of environments, including nursing facilities, subacute care and assisted living facilities, psychiatric hospitals, hospice programs, and home and community-based care.
American Society on Aging
Founded in 1954, the American Society on Aging (ASA) is an association of diverse individuals bound by a common goal: to support the commitment and enhance the knowledge and skills of those who seek to improve the quality of life of older adults and their families. The membership of ASA is a multidisciplinary array of professionals who are concerned with the physical, emotional, social, economic and spiritual aspects of aging. ASA’s 6,000 members include researchers, practitioners, educators, business people and policymakers. ASA offers a diverse array of renowned educational programming, outstanding publications and state-of-the-art information and training resources, and the largest and most dynamic network of professionals in the field of aging.
ApoE4.info, Inc., is dedicated to understanding the APOE-ε4 gene and how it impacts health. It does this through the following methods: providing basic information about the APOE-ε4 gene; running an active forum and Facebook page; acting as a contact point for anyone interested in the APOE-ε4 gene; pursuing research about the APOE-ε4 allele to mitigate related negative health effects including but not limited to Alzheimer’s disease and cardiovascular disease; connecting researchers and carriers of the gene; organizing regular APOE-ε4 Conferences; and working with the media to inform and educate health professionals and the public about the APOE-ε4 gene.
Association of Jewish Aging Services
AJAS represents the best interests of the Jewish aged in communities where membership organizations are located. The members of AJAS administer to the needs of the aging through residential health care; assisted living and group homes; independent and congregate housing; and living-at-home service programs.
AJAS functions to promote the unique role and mission of Jewish-sponsored not-for-profit organizations serving the aging by arranging educational meetings for the mutual exchange of information and ideas for members and all organizations for the aging; by working jointly with and supporting other organizations which serve the aging; by working with members to improve the operation and status of each members organization; and by concerning itself with the welfare of and advocacy for all elderly.
B’nai B’rith International
Founded in 1843, B’nai B’rith International is universally recognized as one of the world’s largest and oldest Jewish human rights, community action, and humanitarian organizations. A constant source of innovation and charity for populations around the world, B’nai B’rith has founded hospitals, orphanages, senior housing communities, disaster relief campaigns, libraries, anti-hatred programs, and countless other initiatives in the public interest. B’nai B’rith is also a tireless advocate for Israel and the Diaspora in a variety of governmental and political arenas. With more than 180,000 members and affiliates in more than 50 countries, B’nai B’rith truly spans the globe in its efforts to make Jewish communities better for all their inhabitants.
Blanchette Rockefeller Neurosciences Institute
The Blanchette Rockefeller Neurosciences Institute (BRNI) is a unique, independent, non-profit institute dedicated to the study of both memory and memory disorders. Its mission is to:
- Expand and advance state-of-the-art scientific research of memory and memory disorders for purposes of prevention, diagnosis, and treatment.
- Promote translation of resulting discoveries to practical medical applications.
BRNI creates a uniquely effective blend of people and technology in an environment conducive to discovery.
The Institute attracts internationally recognized scientists whose lifework centers on unraveling the mysteries of behavior, learning, and memory. The Institute applies advanced principles of molecular and cellular neurobiology to the study of Alzheimer’s disease. Its researchers have the tools to understand the cellular and molecular details of the complexities of brain function in both normal and disease conditions.
The Institute is characterized by a “translational science” approach, developed in recognition of the disconnect between basic science in laboratory settings and actual clinical treatments. This approach is intended to bridge the gap between fundamental research in memory processes and the development of products and treatments for patients with Alzheimer’s disease and other memory impairments by actively promoting the development of important and novel discoveries.
BrightFocus Foundation (formerly American Health Assistance Foundation) is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer’s disease. BrightFocus is working to save mind and sight. BrightFocus is at the forefront of brain and eye health, advancing early-stage, investigator-initiated research around the world. BrightFocus also provides free educational materials to people affected by or interested in these diseases, empowering them to take action for themselves and others. They can take advantage of news and research results offered through publications, social media, videos, podcasts, TV and radio public service announcements, and BrightFocus websites.
Business and Professional Women’s Foundation
BPW/USA, founded in 1919, is a multi-generational nonpartisan membership organization. Established as the first organization to focus on issues of workingwomen, BPW/USA is historically a leader in grassroots activism, policy influence and advocacy for millions of workingwomen. With 20,000 members and 1,300 Local Organizations in 54 states and U.S. territories, including members in every congressional district, BPW/USA is a national, grassroots organization.
Cure Alzheimer’s Fund
The Cure Alzheimer’s Fund’s mission is to fund research with the highest probability of preventing slowing or reversing Alzheimer’s disease. Its focus is not on incremental steps, but more on higher risk/high contribution research. Because the founders pay all the operating expenses and there is no endowment, every dollar given to CAF is immediately used for research with the best chance of leading to new therapies and, hopefully soon, a cure. To date, it has funded $15 million in research at 24 different institutions across the country and one internationally.
Faster Cures is dedicated to saving lives by saving time. Their mission is to identify and implement global solutions to accelerate the process of discovery and clinical development of new therapies for the treatment of deadly and debilitating diseases.
Faster Cures is a force to catalyze systemic change. They:
- Evaluate current systems of disease prevention, research, development, and treatment;
- Identify barriers to efficiency, effectiveness, and expediency in those systems;
- Create achievable action plans to improve those systems;
- Provide seasoned leadership and expertise in implementing those action plans in concert with organizations searching for new medical solutions.
Faster Cures distinguises itself as an “action tank,” reflecting their aggressive efforts to remove the barriers that slow the discovery and development of new medical solutions.
Gerontological Society of America
The Gerontological Society of America (GSA) was established in 1945 to promote the scientific study of aging, to encourage exchanges among researchers and practitioners from various disciplines related to gerontology, and to foster the use of gerontological research in forming public policy. GSA is a non-profit professional organization with more than 5,000 members in the field of aging. GSA provides researchers, educators, practitioners, and policy makers with opportunities to understand, advance, integrate, and use basic and applied research on aging to improve the quality of life as one ages.
Hadassah, the Women’s Zionist Organization of America, is a volunteer women’s organization, whose members are motivated and inspired to strengthen their partnership with Israel, ensure Jewish continuity, and realize their potential as a dynamic force in American society. Since its founding in 1912, Hadassah has grown to more than 300,000 members and largest women’s and the largest Zionist membership organization in the United States . Committed to the centrality of Israel based on the renaissance of the Jewish people in its historic homeland, Hadassah promotes the unity of the Jewish people. Hadassah enhances the quality of American and Jewish life through its education and Zionist youth programs, promotes health awareness, and provides personal enrichment and growth for its members.
International Eye Foundation
The International Eye Foundation (IEF) is dedicated to helping people see. IEF focuses on blindness prevention and sight restoration activities in the developing world. IEF’s achievements include developing eye health services, training ophthalmologists and para-medicals, and fighting vitamin A deficiency, trachoma and river blindness. IEF is currently focusing on strengthening the management, quality of service, and income generating activities of eye clinics so that they are less dependent on outside donors and government funds. Since its founding in founding in 1961, IEF’s sight-saving programs have benefited more than 60 developing nations— where 90% of the world’s blindness exists.
International Longevity Center-USA
Organized in 1990 by Robert N. Butler, M.D., Professor of Geriatrics at Mount Sinai School of Medicine, The International Longevity Center-USA (ILC-USA) is a not-for-profit, nonpartisan research, policy and education organization whose mission is to help societies address the issues of population aging and longevity in positive and constructive ways and to highlight older people’s productivity and contributions to their families and to society as a whole. The ILC-USA is an independent affiliate of Mount Sinai School of Medicine and is incorporated as a tax-exempt 501(c)(3) entity. The center has been located at 60 East 86th Street in New York City since 1999.
The ILC-USA is the first private, nonpartisan, international center devoted to science-based policy development on the aging of populations. It is organized into four programs — Center Research, Communications, Partnerships, and Visiting Scholars. Their overseas partners, the ILCs of Japan, the United Kingdom, France, Dominican Republic, India, Sub-Saharan Africa and Argentina work both independently and collaboratively with the ILC-USA.
All activities are intergenerational or life span in perspective; international, in that they draw on comparative data; and interdisciplinary, in that they bring together experts in a variety of fields to address specific questions.
Men’s Health Network
Men’s Health Network (MHN) is a non-profit educational organization comprised of physicians, researchers, public health workers, individuals and other health professionals. MHN is committed to improving the health and wellness of men through education campaigns, partnerships with retailers and other private entities, workplace health programs, data collection, and working with health care providers to provide better programs and funding for men’s health needs. MHN’s goals include energizing government involvement in men’s health activities so that existing government health networks can be utilized to increase the health and well-being of men.
National Academy of Elder Law Attorneys
The National Academy of Elder Law Attorneys, Inc. is a non-profit association that assists lawyers, bar organizations and others who work with older clients and their families. Established in 1987, the Academy provides a resource of information, education, networking and assistance to those who deal with the many specialized issues involved with legal services to the elderly and people with special needs.
The mission of the National Academy of Elder Law Attorneys is to establish NAELA members as the premier providers of legal advocacy, guidance and services to enhance the lives of people with special needs and people as they age.
National Alliance for Caregiving
Established in 1996, the National Alliance for Caregiving (NAC) is a non-profit coalition of national organizations focusing on issues of family caregiving. NAC members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations.
NAC was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. Recognizing that family caregivers provide important societal and financial contributions toward maintaining the well-being of those they care for, NAC’s mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients.
National Asian Pacific Center on Aging
The National Asian Pacific Center on Aging’s mission is to serve as the leading national advocacy organization committed to the dignity, well-being and quality of life of Asian Pacific Americans (APA) in their senior years.
National Association for Home Care & Hospice
NAHC is the nation’s largest trade association representing the interests and concerns of home care agencies, hospices, home care aide organizations, and medical equipment suppliers. Simply put, NAHC is the one organization dedicated to making home care and hospice providers’ lives easier.
From professional development to fighting for better regulation, from knowing all angles of federal and state regulations to providing the latest information affecting home care and hospice, NAHC stands ready to serve your needs, enabling you to better serve your patients.
National Association of Area Agencies on Aging
The National Association of Area Agencies on Aging (n4a) is the umbrella organization for the 655 area agencies on aging (AAAs) and more than 230 Title VI Native American aging programs in the U.S. Through its presence in Washington, D.C., n4a advocates on behalf of the local aging agencies to ensure that needed resources and support services are available to older Americans. The fundamental mission of the AAAs and Title VI programs is to provide services which make it possible for older individuals to remain in their homes, thereby preserving their independence and dignity. These agencies coordinate and support a wide range of home- and community-based services, including information and referral, home-delivered and congregate meals, transportation, employment services, senior centers, adult day care and a long-term care ombudsman program.
Building upon the existing aging network, n4a’s strives to be a national a focal point for its members in the development and implementation of a nationwide system of home- and community-based long term care. In addition, n4a facilitates cooperative relationships among the aging network, other public agencies, and private sector organizations to develop an accessible and comprehensive long term care system.
National Business Group on Health
Founded in 1974, the National Business Group on Health, formerly the Washington Business Group on Health, is the only national non-profit organization exclusively devoted to representing the perspective of large employers and providing practical solutions to its members’ most important health care problems. Recognized as the leading voice of large employers, the Business Group represents over 200 members on their most important health issues. Business Group members are primarily Fortune 500 companies – including the nation’s most innovative health care purchasers – who provide health coverage for more than 45million U.S. workers, retirees, and their families. The Business Group fosters the development of a quality health care delivery system and treatments based on scientific evidence of effectiveness.
National Commission on Correctional Health Care
The mission of the National Commission on Correctional Health Care is to improve the quality of health care in jails, prisons and juvenile confinement facilities. With support from the major national organizations representing the fields of health, law and corrections, NCCHC’s leadership in setting standards for health services is widely recognized. Building on that foundation, our not-for-profit organization offers a broad array of resources to help correctional health care systems provide efficient, high quality care.
National Consumers League
The National Consumers League is a private, nonprofit advocacy group representing consumers on marketplace and workplace issues. As the nation’s oldest consumer organization, the NCL’s mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For 100 years the National Consumers League has carried forward this founding principle: the working conditions we accept for our fellow citizens should be reflected by our purchases. In addition, the NCL believes that consumers should demand safety and reliability from the goods and services they buy. NCL provides government, businesses, and other organizations with the consumer’s perspective on concerns including child labor, privacy, food safety, and medication information.
National Council on Patient Information and Education
Founded in 1982, the National Council on Patient Information and Education (NCPIE) is a non-profit coalition of over 125 organizations. NCPIE’s mission is to stimulate and improve communication of information on the appropriate use of medicines to consumers and health care professionals. NCPIE develops programs, provides educational resources , and offers services to advance the common mission of its members. NCPIE is the nation’s leading authority for informing the general public and health care professionals on safe medicine use through better communication. NCPIE believes that better medicine communication can lead to better health outcomes and improved quality of life. For nearly 25 years, NCPIE has been at the forefront in promoting information sharing among consumers, prescribers, pharmacists, and other healthcare professionals.
National Electrical Manufacturers Association
NEMA, created in the fall of 1926 by the merger of the Electric Power Club and the Associated Manufacturers of Electrical Supplies, provides a forum for the standardization of electrical equipment, enabling consumers to select from a range of safe, effective, and compatible electrical products.
The organization has also made numerous contributions to the electrical industry by shaping public policy development and operating as a central confidential agency for gathering, compiling, and analyzing market statistics and economic data.
NEMA attempts to promote the competitiveness of its member companies by providing a forum for the:
Development of technical standards that are in the best interests of the industry and the users of its products
Establishment and advocacy of industry policies on legislative and regulatory matters that might affect the industry and those it serves.
National Indian Council On Aging
The National Indian Council On Aging, Inc. (NICOA) was founded in 1976 by members of the National Tribal Chairmen’s Association that called for a national organization to advocate for improved, comprehensive health and social services to American Indian and Alaska Native Elders. NICOA is a 501(c) 3 non-profit corporation that employs more that 30 full time staff.
In addition to providing service through several grants from agencies within the U.S. Department of Health and Human Services, NICOA operates as a National Sponsor of the federal Senior Community Service Employment program (SCSEP) in 15 states through a grant from the Department of Labor. After nearly 30 years, the organization continues to provide service as the nation’s foremost advocate for American Indians and Alaska Native Elders.
National Mental Health Association
The National Mental Health Association is the country’s oldest and largest nonprofit organization addressing all aspects of mental health and mental illness. With more than 340 affiliates nationwide, NMHA works to improve the mental health of all Americans, especially the 54 million people with mental disorders, through advocacy, education, research and service.
National Palliative Care Research and Training Center
The National Palliative Care Research and Training Center (NPCRTC) serves as a resource and national convener for palliative care research by bringing together leaders in palliative care research to collaboratively develop a long term strategic plan that attracts high quality investigators and provides them with technical assistance and research support. The Center encourages and supports regular scientific interchange and networking, initiates and coordinates multi-site studies, develops and funds junior investigators, and finances pilot studies that can lead to larger federally-funded (e.g. NIH) research. The Center focuses on three specific areas: pain and symptom management, health services research — specifically the evaluation of models of care for palliative care delivery, and improving communication between providers and patients through rigorously designed clinical studies.
National Partnership for Women & Families
The National Partnership for Women & Families is a nonprofit, nonpartisan organization that uses public education and advocacy to promote fairness in the workplace, quality health care, and policies that help women and men meet the dual demands of work and family.
Founded in 1971 as the Women’s Legal Defense Fund, the National Partnership has grown from a small group of volunteers into one of the nation’s most powerful and effective advocates for women and families. Working with business, government, unions, nonprofit organizations, and the media, the National Partnership is a voice for fairness, a source for solutions, and a force for change.
National Women’s Health Network
The National Women’s Health Network was founded in 1975 to give women a greater voice within the healthcare system. NWHN is a membership-based organization supported by 8,000 individuals and organizations nationwide. We do not accept financial support from pharmaceutical companies, tobacco companies or medical device manufacturers.
The National Women’s Health Network improves the health of all women by developing and promoting a critical analysis of health issues in order to affect policy and support consumer decision-making. The Network aspires to a health care system that is guided by social justice and reflects the needs of diverse women.
NWHN is committed to advancing women’s health by working towards the long-term goals of:
- Ensuring that women have self-determination in all aspects of their reproductive and sexual health.
- Creating a cultural and medical shift in how menopause is currently perceived and addressed.
- Establishing a universal health care system that reflects the values of the NWHN and meets the needs of diverse women.
To accomplish these goals NWHN shapes policy and consumer health decisions and options by developing and promoting a critical analysis of health issues. NWHN monitors the actions of federal regulatory and funding agencies, industry and the health professions, identifies abuses and makes change by exposing the abuse and catalyzing grassroots action.
Research!America is the largest alliance of stakeholders in basic, behavioral, biotech, clinical, health services, prevention and public health, and therapeutic research from both the public and private sectors. The organization is comprised of 500 institutional members who represent the voices of more than 125 million Americans who support a strong and vibrant research enterprise and better health for all Americans. The organization lead the movement for strong, increased investment in the budgets of the National Institutes of Health and Centers for Disease Control and Prevention and are committed to growth in the research investment of other federal health research agencies including the Agency for Healthcare Research and Quality and National Science Foundation. Research!America is a leader in gathering and presenting public opinion poll data on attitudes toward investment in research. The organization strives to raise awareness of the importance of effective collaboration among the nation’s government, industry, academic and philanthropic research sectors. This alliance of a talented and diverse group of individuals works together to make medical and health research — including research to prevent disease, disability and injury and to promote health — a much higher national priority.
RetireSafe is a grassroots action network representing nearly 400,000 active senior citizen supporters nationwide. Actively promoting dynamic solutions to America’s retirement security challenges, RetireSafe is dedicated to preserving and enhancing the options, benefits, and lives of older Americans.
With more than 70 million of our fellow citizens set to soon join those who are currently retired, RetireSafe is committed to “protecting your retirement and securing your benefits.” Our grassroots network is united in the belief that more choice and control will produce prosperity for young and old. We champion policies that encourage economic growth, wealth creation, and individual choice and control.
RetireSafe continues to be a tireless advocate for the cause of access to safe, affordable, and innovative prescription drugs, medical treatments, and cures for older Americans. RetireSafe, and its almost 400,000 senior citizen supporters, are a driving force in educating older Americans about the valuable and potentially life-saving new Medicare benefits made possible by the Medicare Modernization Act. We strive to continue Medicare’s advances with policies that provide better consumer options and free-market solutions resulting in better health care.
Society for Women’s Health Research
The Society for Women’s Health Research (SWHR), a national non-profit organization based in Washington DC, is widely recognized as the thought leader in research on sex differences and is dedicated to improving women’s health through advocacy, education, and research. Founded in 1990, SWHR aims to bring attention to the myriad of diseases and conditions that affect women uniquely. Due to SWHR’s efforts, women are now routinely included in most major medical research studies and scientists are beginning to consider biological sex as a variable in their research.
Strategic Health Policy International
Strategic Health Policy International (SHPI) assists businesses and governments in addressing policy and political issues in health care. SHPI’s clients include pharmaceutical, biotechnology and medical device companies, health providers, venture firms, trade associations and governments in North America, Europe and Africa. SHPI integrates the twenty-first century world of policy and politics into R&D, strategic planning, marketing, sales, grantseeking, public affairs, legislation and regulation to shape health care products and services.